Director, Patient Advocacy

Company Overview 

Fulcrum Therapeutics, Inc. (“Fulcrum”) [NASDAQ: FULC] is a clinical-stage biopharmaceutical company focused on developing small molecules to improve the lives of patients with genetically defined rare diseases in areas of high unmet medical need. Fulcrum’s lead program in clinical development is pociredir, a small molecule designed to increase the expression of fetal hemoglobin for the treatment of sickle cell disease (SCD).

Description

Reporting to Head of Patient Advocacy, the Director of Patient Advocacy will oversee both the strategic and operational aspects of Fulcrum’s efforts to integrate the patient experience from discovery to commercialization.  This position will vertically and horizontally integrate the patient experience into Fulcrum’s operating model to ensure the patient experience we deliver is best-in class.  A focus on authenticity at every phase of the patient journey at Fulcrum will ensure all patients feel they are part of the Fulcrew while engaging with Fulcrum. 

Responsibilities

Working cross-functionally with internal stakeholder including Government Affairs, Program Management, Program Leadership, Medical Affairs, and Clinical Operations

• In partnership with the Head of Patient Advocacy, build strategic roadmap of patient experience from discovery to commercialization that reflects insights and strategies that help elevate Fulcrum with the communities that it serves.
• Identify opportunities to generate insights and analytics related to patient and caregiver needs across the patient journey and spearheads the execution of these projects in conjunction with the patient services execution team.
• Supports both federal and state policy strategic planning activities to ensure that Fulcrum is positioned well to capital.
• Develop and maintain comprehensive, innovative, value-creating patient experience strategies, ensuring they maintain strategic prominence with key stakeholders!
• Identify industry best practices as well as innovative access services approaches that can improve the ability of Fulcrum to support patients.
• Monitor policy developments to ensure that Fulcrum is well informed and appropriately prepared for the evolving government oversight, regulatory environment, legal, and reputational landscape surrounding manufacturer-sponsored Access Services programs.
• Serve as a strategic planning resource to our internal teams in developing patient services resources across Fulcrum.

Qualifications

• Bachelor’s degree (Advanced degree preferred)
• Have worked in a pre-commercial or commercial rare disease company (preferred)
• 5+ years of a demonstrated track record of developing and implementing patient services programs and patient focused access solutions
• Recognized profile in the industry as a thought leader in patient support and documented ability to engage Senior Leadership on patient-focused support solutions
• Strong, demonstrated track record of connecting and combining ideas, designing pilots and metrics, and driving novel ideas to practical solutions across patient support teams
• Deep understanding of how to identify and address the emotional, physical, and financial barriers patients experience regarding obtaining their prescribed medications
• Understanding of the complex legal, regulatory, and compliance regulations and guidelines around access support program development and execution